My ONeSource™ experience
OneSource™ was recommended to me by an advocacy organization when I initially thought I might have HPP. After reaching out to OneSource™, I was paired with a OneSource™ Case Manager. She was there to help me.”
Ray, HPP STAR
RAY, HPP STAR
Resources for people living with hpp
While living with hypophosphatasia (HPP) may be challenging, there is a community of support waiting to help. Discover the many support options available to patients and their loved ones.
HPP Support from Alexion
HPP EDUCATIONAL Events
Register for an upcoming event
Strensiq Specialty pharmacy support
STRENSIQ is available from a specialty pharmacy called PANTHERx Rare
Your doctor will prescribe STRENSIQ through PANTHERx Rare. This specialty pharmacy handles prescription logistics, including shipment and ongoing refills.
Read PANTHERx’s Welcome Letter to learn more.
Strensiq Treatment Support
From being prescribed STRENSIQ to starting and staying on STRENSIQ, OneSource™ and PANTHERx Rare are here to help
OneSource™ and PANTHERx Rare work together to get STRENSIQ to you or someone you care for. While OneSource™ will be your first point of contact as you make STRENSIQ part of your routine, PANTHERx Rare handles the prescription logistics and may contact you throughout treatment.
JOURNEY FROM PRESCRIPTION TO TREATMENT WITH STRENSIQ
HPP Patient Advocacy Organizations
When living with a rare disease, connecting with others is important. Get to know the groups and organizations that are dedicated to HPP and other rare diseases.
Soft Bones, Inc., The US Hypophosphatasia Foundation provides information and a community to educate, empower, and connect people, families, and caregivers living with HPP.
VISIT WEBSITE
The Avalon Foundation provides emotional and mental support to pediatric patients diagnosed with HPP and undergoing enzyme replacement therapy treatment.
VISIT WEBSITE
Global Genes builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease.
VISIT WEBSITE
The National Organization for Rare Disorders (NORD) provides education, advocacy, research, and patient services for people with rare diseases and other organizations that serve them.
VISIT WEBSITEThe groups listed above are independent, nonprofit patient service organizations. Their listing on this website does not imply endorsement of any product or company. All logos and trademarks are the property of their respective owners.
STRENSIQ may cause serious side effects, including
- Serious allergic (hypersensitivity) reactions happened
in some people who
use
STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency
room right away if you
or
your loved one have any of the signs and symptoms of a serious allergic
reaction, including
- Difficulty breathing
- Swelling of your eyes, lips, or tongue
- Hives
- Feeling faint
- Nausea or vomiting
- Dizziness
- Itching of your lips, tongue, or throat
- Choking sensation
- Skin thickening or pits at the injection site (lipodystrophy) has happened several months after using STRENSIQ.
- Calcium buildup in the eyes and kidneys can occur if you or your loved one have HPP. Your healthcare provider should check the eyes and kidneys while you or your loved one use STRENSIQ.
- Decreased efficacy. Contact your healthcare provider if you or your loved one notice STRENSIQ is no longer working or experience worsening symptoms of HPP (e.g., increased respiratory support, increased difficulty walking, new fractures).
The most common side effects of STRENSIQ include local skin injection-site reactions (red skin patches, bruising, color change, pain, itching, thinning, swelling, pits, and bumps) and calcium buildup in your eyes and kidneys.
STRENSIQ may affect other lab test results, therefore it is important that you present your Medical Alert Card to your healthcare team so they are aware that you are being treated with an alkaline phosphatase (ALP) replacement therapy which may cause incorrect results on certain laboratory tests.
Tell your doctor if you are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed.
These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects. You may report side effects to the US Food and Drug Administration at 1‑800‑FDA‑1088.
INDICATION
What is STRENSIQ?
STRENSIQ is a prescription medicine used to treat people with
perinatal/infantile- and
juvenile-onset hypophosphatasia (HPP).
Please see STRENSIQ full Prescribing Information, including Patient Information and Instructions for Use.
STRENSIQ may cause serious side effects, including
- Serious allergic (hypersensitivity) reactions happened
in some people who
use
STRENSIQ. Stop using STRENSIQ and go to the nearest hospital emergency
room right away if you
or
your loved one have any of the signs and symptoms of a serious allergic
reaction, including
- Difficulty breathing
- Swelling of your eyes, lips, or tongue
- Hives
- Feeling faint
- Nausea or vomiting
- Dizziness
- Itching of your lips, tongue, or throat
- Choking sensation
- Skin thickening or pits at the injection site (lipodystrophy) has happened several months after using STRENSIQ.
- Calcium buildup in the eyes and kidneys can occur if you or your loved one have HPP. Your healthcare provider should check the eyes and kidneys while you or your loved one use STRENSIQ.
- Decreased efficacy. Contact your healthcare provider if you or your loved one notice STRENSIQ is no longer working or experience worsening symptoms of HPP (e.g., increased respiratory support, increased difficulty walking, new fractures).
The most common side effects of STRENSIQ include local skin injection-site reactions (red skin patches, bruising, color change, pain, itching, thinning, swelling, pits, and bumps) and calcium buildup in your eyes and kidneys.
STRENSIQ may affect other lab test results, therefore it is important that you present your Medical Alert Card to your healthcare team so they are aware that you are being treated with an alkaline phosphatase (ALP) replacement therapy which may cause incorrect results on certain laboratory tests.
Tell your doctor if you are pregnant or plan to become pregnant or are breastfeeding or plan to breastfeed.
These are not all the possible side effects of STRENSIQ. For more information, ask your healthcare provider or pharmacist. Call your healthcare provider for medical advice about side effects. You may report side effects to the US Food and Drug Administration at 1‑800‑FDA‑1088.
INDICATION
What is STRENSIQ?
STRENSIQ is a prescription medicine used to treat people with
perinatal/infantile- and
juvenile-onset hypophosphatasia (HPP).