There has never been an approved therapy to treat patients with perinatal/infantile- and juvenile-onset hypophosphatasia —until now.
The US Hypophosphatasia Foundation and Soft Bones Canada provide information and a community to educate, empower, and connect people, families, and caregivers living with hypophosphatasia.
The National Organization for Rare Disorders (NORD) provides education, advocacy, research, and patient services for people with rare diseases and other organizations that serve them.
The Office of Rare Diseases Research (ORDR) is a part of the National Institutes of Health (NIH). This site provides information on hypophosphatasia as well as the opportunity to ask a specialist questions about your experiences with hypophosphatasia.
The MAGIC Foundation provides support and education to families of children with growth disorders and affected adults with endocrine disorders.
Global Genes builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease.
Important Safety InformationWhat is Strensiq® (asfotase alfa)?
Strensiq is a prescription medicine used to treat people with perinatal/infantile- and juvenile-onset hypophosphatasia (HPP).What are the possible side effects of Strensiq?
Strensiq may cause serious side effects, including
- Serious allergic (hypersensitivity) reactions. Serious allergic reactions have happened in some people who use Strensiq. Stop using Strensiq and go to the nearest hospital emergency room right away if you have any of the signs and symptoms of a serious allergic reaction, including
- Difficulty breathing
- Swelling of your eyes, lips, or tongue
- Feeling faint
- Nausea or vomiting
- Itching of your lips, tongue, or throat
- Choking sensation
- Skin thickening or pits at the injection site (lipodystrophy). Lipodystrophy at the injection site has happened several months after using Strensiq
- Calcium buildup in your eyes and kidneys. Your healthcare provider should check your eyes and kidneys while you use Strensiq